Using patient avatars to promote health data sharing applications

Perspectives and regulatory challenges

authored by

Alan Dahi, Nikolaus Forgó, Sarah Jensen, Marc Stauch

Abstract

The potential of ICT to address problems in modern healthcare is considerable, and an ICT-driven revolution in healthcare appears imminent. Such developments may be viewed largely in positive terms. Thus they should result in enhanced treatment and care options, empowering patients - including by permitting greater self-management of illness outside hospital, while offering economic benefits and costs savings over traditional healthcare provision. However, the new possibilities also present manifold risks, such as of data breaches, encroachments on subject autonomy, as well as of other harms. This article considers some of the key regulatory challenges against the background of the progress of the current EU Commission-sponsored 'MyHealthAvatar' project.

Organisation(s)

Institute of Legal Informatics

Type

Review article

Journal

European Journal of Health Law

Volume

23

Pages

175-194

No. of pages

20

ISSN

0929-0273

Publication date

11.04.2016

Publication status

Published

Peer reviewed

Yes

ASJC Scopus subject areas

Health Policy, Law

Sustainable Development Goals

SDG 3 - Good Health and Well-being

Electronic version(s)

https://doi.org/10.1163/15718093-12341391 (Access: Closed)